Help Shape the Future of Sickle Cell Eye Care
Join our Delphi study and share your insights to improve how sickle cell retinopathy is screened, diagnosed, and managed.
What is this About ?
The Sickle Cell Retinopathy Network is a global research initiative working to establish evidence-based consensus guidelines for the management of sickle cell retinopathy — a sight-threatening complication of sickle cell disease.
We are conducting a Delphi study to gather expert opinions from:
- People living with sickle cell disease
- Carers and family members
- Ophthalmologists, haematologists, and other doctors
- Nurses, optometrists, and allied healthcare professionals
Your experience and insights are critical.
What to Expect ?
Participation involves answering a short survey (10–15 minutes).
Your responses will remain anonymous.
You may be invited to participate in 1–2 follow-up rounds to refine consensus.
You can skip any question or withdraw at any time.
Why Your Voice Matters ?
By participating, you are helping shape clinical guidelines that will directly impact care for thousands of people living with sickle cell disease. Your unique perspective is a vital part of this process.